2018 Healthcare Partners

Our Healthcare Partners are an essential part of The Center for Courageous Kids’ overall effort to accomplish our mission statement of inspiring families, empowering children and enhancing lives. All of our Healthcare Partners listed below provide valuable support in recruiting campers, providing diagnosis specific enrichment in camp programming and medical supervision, and funding to ensure the camp experience remains cost free for all campers and families. We are grateful to our Healthcare Partners for helping to make the camp experience the safest and most enjoyable experience for campers and families.

BraveHearts

Brave Hearts is an exceptional support group comprised of families united by their children’s fight to overcome complex heart issues. Brought together by their desire to provide a strong support system to help their children, the Brave Hearts team also reaches out to other families whose children are struggling to overcome congenital heart defects or acquired heart conditions. Through support, family advocacy and fundraising efforts, Brave Hearts plays an active role in supporting Norton Children’s Heart Center.

Wendell Foster

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For nearly 70 years, our focus has been to provide children and adults with developmental disabilities with the tools, education, therapies and support to reach their dreams and potential. As a leader in advanced therapies, Autism Spectrum Disorders and assistive technology, we provide cutting-edge support to over 1300 people in 34 counties across western Kentucky and southern Indiana. Our goal is for the people we serve to become a meaningful part of the fabric of everyday community life.

Songs for Sound

Songs for Sound is a 501c3 charity founded on a heartwarming story & a passionate objective: to provide AWARENESS OF hearing loss solutions, ACCESS TO hearing loss testing and devices and encourage ACTION for those suffering from hearing loss and deafness. Songs for Sound aims to provide everyone with an opportunity to live a mainstream life full of sound and language, and of course, MUSIC.

Hart of Autism

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Hart of Autism is a support group for educators, parents, and children with special needs. Adults come together monthly to offer support, to learn about local resources, to share ideas, and more. Children come and participate in fun, therapeutic activities to build social, behavioral, and communication skills.

Clarksville Association for Down Syndrome

The Clarksville Association for Down Syndrome started in February 2009. As parents of children with Down Syndrome, they each look to one another for support. Their focus is to educate themselves, as well as the community. As parents, they want to make sure that their children have every opportunity available to them now and in the future.

Down Syndrome Association of Middle Tennessee

The Down Syndrome Association of Middle Tennessee is a community of parents, grandparents, siblings, physicians, educators, professionals, friends and self-advocates from forty-one counties in Middle Tennessee who celebrate and support individuals with Down syndrome and their families.

Spina Bifida Association of Kentucky

The Spina Bifida Association of Kentucky’s mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent.

Vanderbilt Center of Excellence in Sickle Cell Disease

The Vanderbilt-Meharry-Matthew Walker Center of Excellence in Sickle Cell Disease is your medical home for life-long care and support from people who know your name. We bring together primary care providers and specialists from local institutions under one roof to treat people with sickle cell disease.

Apraxia Kids

Apraxia Kids is a 501(c)(3) nonprofit publicly funded charity whose mission is to strengthen the support systems in the lives of children with childhood apraxia of speech (CAS) so that each child is afforded their best opportunity to develop speech and communication.

Transverse Myelitis Association

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The Transverse Myelitis Association (TMA) is dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM).

The Coalition Against Pediatric Pain

The Coalition Against Pediatric Pain is a national non-profit committed to improving quality of life for children living with chronic pain from rare diseases. TCAPP was founded by families who are effected by chronic neuropathic pain disease. All of the founding families children suffer from RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome) and many suffer from multiple pain conditions, such as EDS (Hypermobility Syndrome), muscle spasms, migraines, abdominal migraines, and painful GI issues.

Miller Harris Foundation

The Miller Harris Foundation is a nonprofit 501(c)(3) organization established in 2002 by family and friends of Miller Harris in his honor. The Foundation has been set up to promote and support scholarships and organizations in Miller’s name. More importantly, their focus will ensure that memories of Miller are alive and their collective efforts will continue in his honor. The Miller Harris Foundation’s mission is to promote and support asthma education for children, and support of the Department of Recording Industry program at MTSU in Miller Harris’ memory.

Epilepsy Foundation of Indiana

The Epilepsy Foundation of Indiana was created in 2006 to offer education, advocacy and support for all Hoosiers affected by epilepsy. Programs include FREE Seizure Recognition & First Aid trainings, youth & family programs, support groups, a family weekend camp at Center for Courageous Kids, and an annual Indiana Epilepsy Expo. In addition, the Epilepsy Foundation of Indiana has several Community Action Network groups across Indiana – engaging and empowering volunteers to raise awareness and help move our mission forward. Our fundraising events are also designed to raise awareness and educate the public about epilepsy.

Wake Up Narcolepsy

Upon recognizing the great need to raise awareness and research funds for Narcolepsy, Kevin Cosgrove teamed up with Monica and David Gow to establish Wake Up Narcolepsy, Inc. in 2008. Wake Up Narcolepsy has quickly become a national leader for Narcolepsy research and awareness, as it is dedicated to funding research into the causes, prevention, treatments and a cure for Narcolepsy while increasing awareness amongst the public. Every year, Wake Up Narcolepsy hosts various awareness-driven events and makes substantial contributions to cutting-edge Narcolepsy research.

Angelman Syndrome Foundation

The Angelman Syndrome Foundation’s mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.

Kerrington’s Heart

Our mission is to provide education, encouragement and hope, while creating a network of support for the families and caregivers of children with heart disease. We strive to assist patients and families through each step in their journey of dealing with Congenital Heart Defects (CHD). We offer comfort bags, certificates of bravery, educational support and financial assistance to families in need of meals, fuel and lodging.

The Sickle Cell Foundation of Tennessee

The Sickle Cell Foundation of Tennessee (SCFT) is a 501 (C)(3) non-profit organization founded in 2008, by the late Dr. Trevor K. Thompson and Cherry N. Whitehead-Thompson.  Our mission is to provide educational awareness, comprehensive social services, and collective supportive impact to all persons affected by Sickle Cell Disease within our service areas. The vision of SCFT is to improve the quality, self-sufficiency, and sustainment of life of all sickle cell consumers to the highest credible level possible.

Sunrise Children’s Services

Sunrise Children’s Services provides care and hope for hurting families and children through Christ-centered ministries. Sunrise Children’s Services has been at the forefront in the fight to protect Kentucky’s children since 1869. Today, Sunrise is a home for children who have been abused and neglected — children whose lives have been scarred by unspeakable physical, sexual, and emotional abuse — and who have been removed from their homes. From the president of our organization down to our direct care staff, our goal every day is to provide a place of refuge, of hope, of love, and of healing to these children whose lives have been devastated.

Briezy’s Bunch

Briezy’s Bunch is a 501c3 not-for-profit organization that aims to make an impact in the lives of those affected by epilepsy by providing financial assistance when insurance denied critical care needs, emotional support, and educational and advocacy resources.

UK HealthCare Hemophilia Treatment Center (UKHTC)

The UK HealthCare Hemophilia Treatment Center (UKHTC) is a comprehensive care center for adults and children with congenital bleeding disorders. It is a federally-funded center recognized for having multidisciplinary providers who have specialized knowledge in this unique sub-specialty. At Kentucky Children’s Hospital, we treat children with blood disorders and cancers with the most advanced medicine by our team of specialists in hematology and oncology. We take a team approach to your child’s care including board-certified pediatric hematologist-oncologists, pharmacists, social workers, and certified pediatric oncology nurses. We offer complete and compassionate care to kids with blood disorders and diseases, right here in Kentucky.