2019 Healthcare Partners

The Angelman Syndrome Foundation’s mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.

Apraxia Kids is a 501(c)(3) nonprofit publicly funded charity whose mission is to strengthen the support systems in the lives of children with childhood apraxia of speech (CAS) so that each child is afforded their best opportunity to develop speech and communication.

Brave Hearts is an exceptional support group comprised of families united by their children’s fight to overcome complex heart issues. Brought together by their desire to provide a strong support system to help their children, the Brave Hearts team also reaches out to other families whose children are struggling to overcome congenital heart defects or acquired heart conditions. Through support, family advocacy and fundraising efforts, Brave Hearts plays an active role in supporting Norton Children’s Heart Center.

The Epilepsy Foundation of Indiana was created in 2006 to offer education, advocacy and support for all Hoosiers affected by epilepsy. Programs include FREE Seizure Recognition & First Aid training, youth & family programs, support groups, a family weekend camp at Center for Courageous Kids, and an annual Indiana Epilepsy Expo. In addition, the Epilepsy Foundation of Indiana has several Community Action Network groups across Indiana – engaging and empowering volunteers to raise awareness and help move our mission forward. Our fundraising events are also designed to raise awareness and educate the public about epilepsy.

Experiencing Autism Together is a nonprofit organization that provides families in their community with Christ centered support spiritually and emotionally; acceptance and understanding; fun family outings; family “wishes”; community resources; and valuable friendships that last a lifetime.

Families on the Spectrum is a 501(c)(3) non-profit group that focuses on the family aspect of autism. The board of directors is comprised of volunteer autism parents who are truly passionate about helping others. It is their group mission to provide fun family outings, meetings, parents’ nights out, and offer community support. Their goal is to focus on fun AND families in hopes of building connections and life long bonds with one another.

Hart of Autism is a support group for educators, parents, and children with special needs. Adults come together monthly to offer support, to learn about local resources, to share ideas, and more. Children come and participate in fun, therapeutic activities to build social, behavioral, and communication skills.

Our mission is to provide education, encouragement and hope, while creating a network of support for the families and caregivers of children with heart disease. We strive to assist patients and families through each step in their journey of dealing with Congenital Heart Defects (CHD). We offer comfort bags, certificates of bravery, educational support and financial assistance to families in need of meals, fuel and lodging.

The Miller Harris Foundation is a nonprofit 501(c)(3) organization established in 2002 by family and friends of Miller Harris in his honor. The Foundation has been set up to promote and support scholarships and organizations in Miller’s name. More importantly, their focus will ensure that memories of Miller are alive and their collective efforts will continue in his honor. The Miller Harris Foundation’s mission is to promote and support asthma education for children, and support of the Department of Recording Industry program at MTSU in Miller Harris’ memory.

Believing that that when one person serves the whole family serves, Project Sanctuary takes a human-centered, solution-based approach to helping at-risk military families heal and move forward in life. Through innovative long-term programming focused on connectedness, we restore hope and empower families to recover and thrive.

Songs for Sound is a 501c3 charity founded on a heartwarming story & a passionate objective: to provide AWARENESS OF hearing loss solutions, ACCESS TO hearing loss testing and devices and encourage ACTION for those suffering from hearing loss and deafness. Songs for Sound aims to provide everyone with an opportunity to live a mainstream life full of sound and language, and of course, MUSIC.

The Spina Bifida Association of Kentucky’s mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent.

The Coalition Against Pediatric Pain is a national non-profit committed to improving quality of life for children living with chronic pain from rare diseases. TCAPP was founded by families who are effected by chronic neuropathic pain disease. All of the founding families children suffer from RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome) and many suffer from multiple pain conditions, such as EDS (Hypermobility Syndrome), muscle spasms, migraines, abdominal migraines, and painful GI issues.

The Sickle Cell Foundation of Tennessee (SCFT) is a 501 (C)(3) non-profit organization founded in 2008, by the late Dr. Trevor K. Thompson and Cherry N. Whitehead-Thompson.  Our mission is to provide educational awareness, comprehensive social services, and collective supportive impact to all persons affected by Sickle Cell Disease within our service areas. The vision of SCFT is to improve the quality, self-sufficiency, and sustainment of life of all sickle cell consumers to the highest credible level possible.

The Transverse Myelitis Association (TMA) is dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM).

The UK HealthCare Hemophilia Treatment Center (UKHTC) is a comprehensive care center for adults and children with congenital bleeding disorders. It is a federally-funded center recognized for having multidisciplinary providers who have specialized knowledge in this unique sub-specialty. At Kentucky Children’s Hospital, we treat children with blood disorders and cancers with the most advanced medicine by our team of specialists in hematology and oncology. We take a team approach to your child’s care including board-certified pediatric hematologist-oncologists, pharmacists, social workers, and certified pediatric oncology nurses. We offer complete and compassionate care to kids with blood disorders and diseases, right here in Kentucky.

The Vanderbilt-Meharry-Matthew Walker Center of Excellence in Sickle Cell Disease is your medical home for life-long care and support from people who know your name. We bring together primary care providers and specialists from local institutions under one roof to treat people with sickle cell disease.

Upon recognizing the great need to raise awareness and research funds for Narcolepsy, Kevin Cosgrove teamed up with Monica and David Gow to establish Wake Up Narcolepsy, Inc. in 2008. Wake Up Narcolepsy has quickly become a national leader for Narcolepsy research and awareness, as it is dedicated to funding research into the causes, prevention, treatments and a cure for Narcolepsy while increasing awareness amongst the public. Every year, Wake Up Narcolepsy hosts various awareness-driven events and makes substantial contributions to cutting-edge Narcolepsy research.

For nearly 70 years, our focus has been to provide children and adults with developmental disabilities with the tools, education, therapies and support to reach their dreams and potential. As a leader in advanced therapies, Autism Spectrum Disorders and assistive technology, we provide cutting-edge support to over 1300 people in 34 counties across western Kentucky and southern Indiana. Our goal is for the people we serve to become a meaningful part of the fabric of everyday community life.